The evidence informing Patient Preview
Predictability and visual preparation
Visiting an unfamiliar healthcare environment can be stressful for anyone. For people on the autism spectrum, uncertainty, sensory sensitivities and communication difficulties can create significant barriers to accessing care.
Research highlights the serious consequences of these barriers, alongside the value of predictability, visual communication and preparation in helping people navigate unfamiliar experiences.
Patient Preview draws on these established approaches to help make healthcare environments more familiar, understandable and accessible.
Serious barriers, serious consequences
Research published in BMJ Open in 2022 found that adults on the autism spectrum experienced substantially greater difficulties accessing primary healthcare than adults without autism.¹
An international survey involving 507 adults on the autism spectrum and 157 adults without autism found the following:
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80% of adults on the autism spectrum reported difficulty visiting a GP, compared with 37% of adults without autism.
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63% reported difficulty not knowing what would happen during a consultation, compared with 16% of adults without autism.
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70% reported difficulty with uncertainty about waiting times, compared with 30% of adults without autism.
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34% had not accessed treatment for a potentially serious or life-threatening condition.
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69% had experienced an untreated mental health condition.
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63% had experienced an untreated physical health condition.
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60% had been told they should have seen a doctor sooner.
Local research involving almost 36,000 Australians on the autism spectrum found a mortality rate more than twice that of the general population.
The science behind visual communication
The importance of predictability
Predictability is an important consideration in creating autism-friendly healthcare environments.
In 2023, researchers published the Autistic SPACE framework, identifying five key considerations for improving healthcare accessibility for people on the autism spectrum: Sensory needs, Predictability, Acceptance, Communication and Empathy.²
The framework specifically recommends providing clear information in advance, including photographs or videos of healthcare environments and staff, to help patients know what to expect.
Australian autism organisations, including Autism Association of Western Australia and Autism Spectrum Australia (Aspect), also provide guidance on structured supports, visual schedules and advance information to help people understand routines, anticipate transitions and prepare for changes.³ ⁴
Knowing what to expect can help make unfamiliar experiences more manageable, particularly for people who experience anxiety or difficulty with uncertainty.
How visual aids can help
Visual resources such as photographs, diagrams, schedules and step-by-step instructions can make information more accessible and unfamiliar situations easier to understand.
This may be particularly beneficial for some people on the autism spectrum who demonstrate strengths in visual processing, including recognising patterns and identifying fine details. Research has also identified differences in brain activity associated with visual processing, although these differences do not necessarily indicate superior visual abilities in every individual or task.⁵
Unlike spoken explanations, visual resources can be revisited as often as needed, allowing people to process information at their own pace.
A peer-reviewed review of visual supports published in Autism identified their potential to increase predictability, support communication, encourage participation and reduce anxiety. However, the authors also noted limitations in the available evidence, particularly for visual supports used outside educational settings.⁶
Research and professional guidance suggest that visual schedules and related supports can help some people follow routines, understand sequences of activities and participate more independently.³ ⁴ ⁶ ⁷
The effectiveness of these approaches varies according to individual needs, the type of visual support and how it is used.
Why real images matter
Photographs can provide a particularly useful way to communicate information about real people, objects and environments.
A study published in the Journal of Autism and Developmental Disorders found that children on the autism spectrum remembered newly learnt object names more accurately when presented with colour photographs rather than black-and-white cartoons.⁸
Although this research examined word learning rather than healthcare preparation, it suggests that realistic photographs may offer advantages over simplified illustrations for certain learning tasks.
Importantly, the Autistic SPACE framework also specifically recommends providing photographs or videos of healthcare environments and staff to help patients prepare for visits.²
Patient Preview is informed by research and established professional guidance on accessibility and visual supports. Its individual resources have not yet been independently evaluated for their effects on patient anxiety or healthcare outcomes. We welcome any feedback, suggestions or research opportunities.
References:Doherty M, Neilson S, O'Sullivan J, et al. (2022). Barriers to healthcare and self-reported adverse outcomes for autistic adults: a cross-sectional study. BMJ Open, 12. https://doi.org/10.1136/bmjopen-2021-056904
Doherty M, McCowan S, Shaw SCK. (2023). Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings. British Journal of Hospital Medicine, 84(4), 1–9. https://doi.org/10.12968/hmed.2023.0006
Autism Association of Western Australia. Autism support strategies. https://www.autism.org.au/what-is-autism/autism-support-strategies/
Autism Spectrum Australia (Aspect). Structured supports. https://www.aspect.org.au/resource-library/structured-supports
Samson F, Mottron L, Soulières I, Zeffiro TA. (2012). Enhanced visual functioning in autism: An ALE meta-analysis. Human Brain Mapping, 33(7), 1553–1581. https://doi.org/10.1002/hbm.21307
Rutherford M, Baxter J, Grayson Z, Johnston L, O'Hare A. (2020). Visual supports at home and in the community for individuals with autism spectrum disorders: A scoping review. Autism, 24(2), 447–469. https://doi.org/10.1177/1362361319871756
Liang Z. (2025). CHECK Visual Schedules to Support Individuals on the Autism Spectrum. Intervention in School and Clinic, 60(4). https://doi.org/10.1177/10534512241300157
Carter CK, Hartley C. (2021). Are children with autism more likely to retain object names when learning from colour photographs or black-and-white cartoons? Journal of Autism and Developmental Disorders, 51, 3050–3062. https://doi.org/10.1007/s10803-020-04771-2